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New Jersey Carcinoid Cancer NETwork

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IMPORTANT NEWS - We are pleased to advise that representatives from Ipsen will be at our May 1st meeting to present information and answer questions on SOMATULINE DEPOT (lanreotide).  All of our meetings are valuable to both the newly diagnosed and "veterans," but the May 1st meeting is one you definitely won't want to miss!

Thank you Jim!

The Executive Board and members of the NJ Carcinoid Cancer Network wish to acknowledge the many years of service and tremendous dedication of Jim Weiveris to this community. For more than 15 years, countless carcinoid and neuroendocrine cancer patients and caregivers relied on Jim for his sage advice and counsel. In thousands of hours of work, planning, writing, copying, counseling, and commiserating with people all over the country, and in four major carcinoid educational conferences, Jim demonstrated a concern and compassion that is truly rare. The breadth of his knowledge about carcinoid and neuroendocrine cancers is and was amazing, and will be truly missed. We wish him (and Cyndi) well!

The New Jersey Carcinoid Cancer NETwork has been serving the NJ community since 2001, when we started as the NJ Chapter of the Metro New York Carcinoid Support Group. When the metro group was formed, it was thought that because Carcinoid and other Neuroendocrine Tumors (NETs) were so rare, it would require a large geographic area to create a comprehensive group. With the advent of increased awareness, in part due to support groups, we are now able to provide a more localized group to better serve everyone.

We hold in-person meetings most months. Our meetings are far from pity parties. Instead, we exchange information about diagnosis, treatment, and our research and experiences with all types of NeuroEndocrine Tumors (NETs). We laugh more than we cry, and are more like a support group without the tissue boxes. At these meetings we can discuss details that would often be lost through any other means of communication other than face to face. Click here more details about those meetings.

Browse our website for more information about the NJ Carcinoid Cancer NETwork. Please note that the website is a work in progress, so you'll want to check back for newly added material. If you have any questions or would like to speak Monica, Susan & Sue in NY-scaledwith a NJ Carcinoid Cancer NETwork representative, please email Pat at pat@njcarcinoidnetwork.org or call 732-202-8238.

Our mission is to promote awareness of Carcinoid and other Neuroendocrine Tumors (NETs) and to provide shared information to patients, caregivers and medical professionals to assist them in managing their disease, and to provide treatment and diagnostic options that may not be common knowledge.

Can't make it to a meeting? Contact us with any questions you may have.

Copyright 2011, 2012, 2013, 2014, 2015, 2016 NJCCN. Information here is not intended to be medical advice, but information for discussion with your medical team